Posted: 22/10/2010 at 19:24
Hey all..It's been so long since I've been on here! It's been lovely to be able to read through and catch up on how your all doing!
Sounds like everyone has had a busy few months..this week alone all 3 of my children have hospital appointments..that's not inculding any other treatments Lillith has!
Reading the last few posts have touched a nerve..It's so hard to run around, listen to peoples points of view..keep on top of everything and stay sane isn't it!?!
I feel like my complete life is medical these days..in fact my eldest has recently been diagnosed with Hypermobility and I'm sure her consultant thought I was mad because I new what he was checking for pretty quickly and some treatments. All from special needs group we go to!
And in April my middle child was diagnosed with diabeties..type 1, which at the lovely age of 11 has not gone down well..constant battles there.
Throuhout all this Lillith has continued to amaze us all, she easily fills in the 'gaps' in her vision with her knowledge and is a realy madam. She was 2 at the begining of October and the latest phrase is 'oh my god, i cannot believe it' (thank you my 13 year old!!).
Her vision is not improving too much, but remaining stable, next eye test is 4th Nov, but unfortunatly after a tonic clonic a few months back we've lost the epilepsy control and I am now getting ready to start the mammoth task of changing her medication over a six week period!
All in all it's all getting a little much, I had not stopped to consider just taking a step in here to have a chat with you ladies xx
I hope the appointment goes well next week Hayley, look forward to more updates ladies..and hope to get on here a little more.