Posted: 16/05/2013 at 14:15
Well, we've finally got our confirmed diagnosis of 'Autism', she is showing all the classic flags as concluded from just about everyone who has seen/interacted with her. Now we move forward with the next steps in having educational support coming to visit both at home & nursery, getting her statemented ready for school & the more daunting task of looking into which school/the level of learning support she'll need.
My planned 'job hunt' has now gone out the window as more & more appointments, visits & 'care plans' are being arranged. Nursery are struggling on some days because she still doesn't really know how to communicate her wants & needs & can seem to be quite spiteful to the other children when trying to get them to play because there are no words just pulling, pushing & hand gestures to try & convey her wishes. Potty training has gone out the window again because of the lack of communication & feeling so overwhelmed at times.
The nursery are now able to apply for additional government funds & 'care staff' to assist with Samantha in her final year before school. I am going to be meeting with Educational Support regularly over the next 6mths to help try & determine what learning needs she has ready to select our choice of schools for enrollment. I've been told to apply for DLA & if successful with that to also look at my Tax Credits as I may be entitled to more. I've been told to speak to the paediatrics team about 'free nappies' until she's potty trained as it could be months/years before she is.
If I'm overwhelmed trying to process all this, DH is struggling with his half acceptance that she's autistic but still half expecting that this time next year she'll be completely different & ready to start school like every other child her age (if we've had this little progress in 3.5 yrs with her why would this coming year be any different regarding speech & toilet training?) It doesn't help with my well-meaning mother & DH not seeing eye-to-eye & both of them quick to jump at the other one with shouts of 'You're clueless' or 'You're in denial'.
So onward & upward, more appointments due in the next few weeks, just wishing I had more answers now (how to communicate when she's shown little interest/acknowledgement of sign language but 'flash cards' she just sits & rips apart?) Hope everyone else is doing ok. Best wishes.