My baby girl has had a bleed on the brain

15 messages

clairesthings Silver member

23/10/2008 at 17:17

My beautiful baby Girl Isabel who was born on 2nd September 08 has had a bleed on the brain, the nuero consultant is convinced it didn't happen in delivery (we had a traumatic birth) but are unsure what has caused it.

She has been for an MRI and that still hasn't given us any answers, we do not know what the long term effects of this as the baby brain is very intelligent and could compensate for any damage. But it could also leave her with learning difficulties.

She has just gone seven weeks and she isn't yet following us with her eyes around the room or smiling if we talk to her, as first time parents unsure if this is just her late development or to do with the bleed.

She is being monitored on weekly basis (& daily by us) by consultants to ensure fluid isn't building up on brain.

Just wondered if anyone else has a similar experience with this.

We are still really in a daze about all this as I was so careful all through pregnancy and was so happy when she was born (as i thought she was going to be a boy!)

Any replies would be appreciated.

Claire & Izzy
XXXX

barneybo

23/10/2008 at 19:18

Dear Claire & Izzy,
I am so sorry to hear about your troubles. None of mine had any similar complecations but I did have 2 who where in special care with quite serious problems that could cause learning delays. All I can advise is to do what I was told to do, enjoy every minute with your baby as the time flies past so quickly, you blink and they are toddlers!!, and take each day at a time. You will worry over everything but try to enjoy lots of cuddles and make some YOU time, even if its just a soak in the bath.
Hope you get more information and will be thinking about you, try to stay positive [ although a good rant and a good cry can also do you the world of good]
Breige

clairesthings Silver member

24/10/2008 at 04:58

Hi Breige

Thank you so much for your kind words, we just need to take every day as it comes.

Best wishes to all your family.

Claire & Izzy
XXXX

2ZE

24/10/2008 at 08:25

Hello Claire and Izzy,
I am not yet a Mum but thought I would let you know about my cousins baby William as he had a bleed on the brain. William was born via a C section as he was breach. He was discharged in great health. He did not gain alot of weight after he was born,his head looked quite large compared to his body and he was pale. After investigations they found he had a bleed on the brain and fluid was building up.
They think when they tried to turn him before he was born to try and avoid a c-section that they may have damged a valve at the back of his head. The doctors talked about shunts to drain of the fluid and operations etc to correct this problem. It was a very stressful time and William was not a happy little guy. To cut a long story short Williams own body corrected the damged valve and he got better on his own and is now in perfect health and a normal lively 2 year old. The doctors were amazed but it shows how amazing the human body can be.
I hope this story gives you hope that things will be ok.
Lots of good wishes to you and Izzy.
xxxxxxxxxx

clairesthings Silver member

24/10/2008 at 09:20

Hi 2ZE

Thank you so much for your reply, even though Izzy has a blockage it is not causing any fluid to build up, so we are having regular head measurements taken to monitor this, otherwise they talked about drains etc.

It is so good to hear a positive story for a change as all we have received so far (not from here) from other people are horror stories. i'm just hoping and praying that we are as lucky as william.

Hope all goes well with you

Kindest regards

Claire & Isabel
XXXX

tinkerbell83 Platinum member

15/11/2008 at 15:00

hi ya my first little boy who was born 10 weeks prem had 3 bleeds on his brain he has got some special needs and did end up with fluid on his brain they left it as it wernt that bad and it went bac to normal all he has got hi scar tissue on his brain were the bleeds were i no how u feel its so scarey wen u r told that it has happend hopefully all shud b fine 4 ure little girl take care hun xxx

tinkerbell83 Platinum member

15/11/2008 at 15:01

tinkerbell83 Platinum member

15/11/2008 at 15:01

Sweety_tweety_sweet Silver member

21/06/2012 at 12:58

My son's delivery was normal without using any tools and was a full term 7.6 lbs baby. No issues that we noticed on the day of and next day when we came home until we noticed him having siezures. We ran to the emergency and there he was diagnosed with blood hemorrhage in left front side of his brain. There was blood in fuild between brain and outerside as well. The hospital treated him with the siezure medications and was under close watch for head measurement for any more damage. He was on ventilation for a week and on top of that after he was desaturating. No one is able to identify the cause of it. Luckily it was started to heal by itself. By 6 months all the blood was gone and it was just a bit swollen. Just like all other babies his milestones are reaching how its suppose to be and now he is a handful, smart, and lovely kid.

Hope your little princess is much better now as she is much older. Can you please let me know how she would behave as in personality wise? Is she walking and talking fine?

Our prayers are with these little angles.

Florence Mohlabi Silver member

04/07/2012 at 14:19

Hi, i have a baby boy, born at 25 weeks, he is prem. but he started to smile when he was 8 months but he cant sit or crowl or walk and he is 11 months. i took him to physio and specialist. he is going to crech now to play with other kids and he is doing fine since he is started the crech. now he can smile and say " mbrrr" and laugh, the creches also helps our children, because when he is at home he cant hear loader noise and other kids voices can help a lot. i wont give up because he is developing slow. i understand your situation becuase is similar to mine.

florence mohlabi

ebony bizzle Silver member

30/01/2013 at 07:24

my daughter was born premature i was 36 weeks nd she had a seizure which cause bleeding mi daughter is now one she is walking and playing but hasnt grasp talking or alot of other milestones as a one year old i was looking for someone who has went through anything simliar because everyday i fear for her

AntiVaccineGrandmother Silver member

23/02/2013 at 15:13

I would like to tell all of you that whenever anything unusual happens to an otherwise healthy baby, you MUST look at the connection to vaccines. My grand-daughter bled in her brain and had a stroke and we did not know why. After many tears and many books, articles and correspondence with dedicated physicians, we learned that the antibiotics in vaccines can cause destruction of vitamin K (which is essential for proper blood clotting). The antibiotics destroy the gut flora which disables the vitamin K production thus putting the infant into harm's way. Most pediatricians are clueless and even if they knew they would not tell you since nearly every doctor has been brainwashed into accepting vaccines as good - trust me they are not. You don't have to take my word for it, research it yourself. Go to www.nvic.org or simply google vaccine injury. I pray every day that more parents will awaken to the truth about vaccines. Nothing will awaken you faster than seeing your beloved grand-daughter near death. God bless and keep your babies safe!

Summers mom Silver member

27/02/2013 at 15:06

Summers mom Silver member

27/02/2013 at 15:07

My daughter was born with a right frontal brain hemorrhage with no known cause to date. I had a healthy pregnancy and a normal birth. We are going to pediatricians and developmental follow up clinic as well as MRIs ad meetings with neurologists to monitor her and try to find a cause.

I jut find it so difficult somedays. She seems to be developing normally hitting all her milestones but I can't help but feel guilt. As though there was something g I could have done differently to prevent this from ever happening to her. I am terrified to have another baby for feat of having the same thing happen.

I just need some insight into how your children are developing. If you had unanswered questions that were eventually answered. If there is a light at the end of the tunnel. Or if you have words of wisdom or comfort.