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Posted : Oct 23, 2008 10:17:08 PM
Subject : My baby girl has had a bleed on the brain
My beautiful baby Girl Isabel who was born on 2nd September 08 has had a bleed on the brain, the nuero consultant is convinced it didn't happen in delivery (we had a traumatic birth) but are unsure what has caused it.
She has been for an MRI and that still hasn't given us any answers, we do not know what the long term effects of this as the baby brain is very intelligent and could compensate for any damage. But it could also leave her with learning difficulties.
She has just gone seven weeks and she isn't yet following us with her eyes around the room or smiling if we talk to her, as first time parents unsure if this is just her late development or to do with the bleed.
She is being monitored on weekly basis (& daily by us) by consultants to ensure fluid isn't building up on brain.
Just wondered if anyone else has a similar experience with this.
We are still really in a daze about all this as I was so careful all through pregnancy and was so happy when she was born (as i thought she was going to be a boy!)
Any replies would be appreciated.
Claire & Izzy
XXXX
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barneybo
Joined : Sep 14, 2008
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Posted : Oct 24, 2008 12:18:56 AM
Dear Claire & Izzy,
I am so sorry to hear about your troubles. None of mine had any similar complecations but I did have 2 who where in special care with quite serious problems that could cause learning delays. All I can advise is to do what I was told to do, enjoy every minute with your baby as the time flies past so quickly, you blink and they are toddlers!!, and take each day at a time. You will worry over everything but try to enjoy lots of cuddles and make some YOU time, even if its just a soak in the bath.
Hope you get more information and will be thinking about you, try to stay positive [ although a good rant and a good cry can also do you the world of good]
Breige
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claireandbump
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Posted : Oct 24, 2008 9:58:30 AM
Hi Breige
Thank you so much for your kind words, we just need to take every day as it comes.
Best wishes to all your family.
Claire & Izzy
XXXX
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2ZE
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Posted : Oct 24, 2008 1:25:58 PM
Hello Claire and Izzy,
I am not yet a Mum but thought I would let you know about my cousins baby William as he had a bleed on the brain. William was born via a C section as he was breach. He was discharged in great health. He did not gain alot of weight after he was born,his head looked quite large compared to his body and he was pale. After investigations they found he had a bleed on the brain and fluid was building up.
They think when they tried to turn him before he was born to try and avoid a c-section that they may have damged a valve at the back of his head. The doctors talked about shunts to drain of the fluid and operations etc to correct this problem. It was a very stressful time and William was not a happy little guy. To cut a long story short Williams own body corrected the damged valve and he got better on his own and is now in perfect health and a normal lively 2 year old. The doctors were amazed but it shows how amazing the human body can be.
I hope this story gives you hope that things will be ok.
Lots of good wishes to you and Izzy.
xxxxxxxxxx
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claireandbump
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Posted : Oct 24, 2008 2:20:54 PM
Hi 2ZE
Thank you so much for your reply, even though Izzy has a blockage it is not causing any fluid to build up, so we are having regular head measurements taken to monitor this, otherwise they talked about drains etc.
It is so good to hear a positive story for a change as all we have received so far (not from here) from other people are horror stories. i'm just hoping and praying that we are as lucky as william.
Hope all goes well with you
Kindest regards
Claire & Isabel
XXXX
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tinkerbell83
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Posted : Nov 15, 2008 7:00:23 PM
hi ya my first little boy who was born 10 weeks prem had 3 bleeds on his brain he has got some special needs and did end up with fluid on his brain they left it as it wernt that bad and it went bac to normal all he has got hi scar tissue on his brain were the bleeds were i no how u feel its so scarey wen u r told that it has happend hopefully all shud b fine 4 ure little girl take care hun xxx
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tinkerbell83
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Posted : Nov 15, 2008 7:01:11 PM
hi ya my first little boy who was born 10 weeks prem had 3 bleeds on his brain he has got some special needs and did end up with fluid on his brain they left it as it wernt that bad and it went bac to normal all he has got hi scar tissue on his brain were the bleeds were i no how u feel its so scarey wen u r told that it has happend hopefully all shud b fine 4 ure little girl take care hun xxx
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tinkerbell83
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Posted : Nov 15, 2008 7:01:59 PM
hi ya my first little boy who was born 10 weeks prem had 3 bleeds on his brain he has got some special needs and did end up with fluid on his brain they left it as it wernt that bad and it went bac to normal all he has got hi scar tissue on his brain were the bleeds were i no how u feel its so scarey wen u r told that it has happend hopefully all shud b fine 4 ure little girl take care hun xxx
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